Zofia Consulting is a proud team member with Answer ALS and the NFL.
The “Game-Changing” campaign, highlighting NFL’s most famous game-changing moments, is born out of a partnership between the NFL and Answer ALS. Its purpose is to give ALS its own game-changing moment by driving donations where urgency is needed – research.
The featured game-changing moments include: Dwight Clark’s “The Catch,” Dave Casper’s “The Ghost to the Post,” Roger Staubach’s “The Hail Mary,” Odell Beckham Jr.’s “The One Hander,” and Steve Gleason’s “The Rebirth.” https://youtu.be/gfU5c4eoDl0
The 2015 social media campaign, the “Ice Bucket Challenge,” drew widespread awareness for ALS, and the “Game-Changing” campaign is building on its success to leverage the power of emotion to rally NFL fans around finding a cure for the disease.
The NFL and its teams, Team Gleason, current and past NFL players, Johns Hopkins Packard Center for ALS Research, Cedars-Sinai, Harvard and many others will also participate in the campaign. In addition, the broader ALS community including the creators of the Ice-Bucket Challenge, Pete Frates and Pat Quinn, will also be participating.
You can help NOW
Text “ALS” to 27722 to donate $5.
To further support ALS research and for more information, please visit http://answerals.org/.
Thank you for your support!
CEO, Zofia Consulting
“Collaboration, Accountability, Responsibility, Benchmarks – combined with the best scientists in the world….” This is the Answer ALS Project.
Zofia Consulting actively and proudly supports Answer ALS.
Answer als is AN UNPRECEDENTED EFFORT
Nearly two dozen research entities, 1000 patients, five clinic sites: this is the single largest coordinated ALS research effort in history. This is a highly collaborative program instituting a framework from the leading neuroscientists from across the nation. Recruiting for patients will start soon! Please stay tuned to answerals.org for details.
Learn more about Answer ALS on the Charlie Rose show with Jay Fishman (CEO, Travelers) and Dr. Rothstein (Brain Science Institute, Johns Hopkins). Their interview starts about mid way through and after Dr. Francis Collins from the NIH.
WHERE: National Convention Center, 123 Upper Belmont Dr., Leesburg, VA 20175
WHO: This event is open to everyone, and will illustrate some of the most amazing technologies and ideas from industry and students alike!
$30 with 50% donated to education, Academia and Government are FREE
This first-of-its-kind-in-the nation event features:
- Gov. McAuliffe of Virginia Commonwealth
- Dr. David Bray, CIO of the FCC
- Judges Panel with leaders from LCPS, GWU, ODU, NASA, DHS, Microsoft, Verizon, and CIT
- Students from schools throughout Loudoun County
The Finalists demonstrating are:
- Amora Lifestyle Wearables
- Dan Johnson, a private citizen, “Teacher Attention Units: A new way to measure class size and teacher workload” (Honorable Mention for his innovative approach and willingness to donate his time as a private citizen to improve public schools)
If you have any questions or difficulties, please contact Michelle Chance at firstname.lastname@example.org.
Zofia Consulting is a proud member of the Innovative Solutions Consortium
Johns Hopkins University, Cedars-Sinai and Massachusetts General Hospital Announce Groundbreaking ALS Research Project of ANSWER ALS
Research Designed to Fully Understand and Defeat ALS; “Big Data” Technology Will Drive Unprecedented Analysis Capability
$20 Million in Funding from Committed Team of Donors, including the National Football League, the PGA TOUR, ALS Finding a Cure (a project of the Leandro P. Rizzuto Foundation), Travelers, The Fishman Family and The Bari Lipp Foundation
The Robert Packard Center for ALS Research at Johns Hopkins, Cedars-Sinai Medical Center’s Regenerative Medicine Institute and the Massachusetts General Hospital Neurological Clinical Research Institute today announced the launch of an Amyotrophic Lateral Sclerosis (ALS) research project of Answer ALS, the largest single coordinated and comprehensive effort to end ALS. ALS is a devastating, progressive and fatal neuromuscular illness for which there is no effective treatment. In ALS, gradual degeneration of motor nerve cells in the brain and spinal cord causes increased difficulty swallowing and breathing, and eventually leads to paralysis. A new person is diagnosed with ALS every 90 minutes in the United States.
The mission of Answer ALS is to:
“This is an unprecedented approach to understanding and defeating disease,” said Dr. Jeffrey Rothstein, Director of the Brain Science Institute and the Robert Packard Center for ALS Research at Johns Hopkins University and the Executive Director of Answer ALS. “This project will bring together world-renowned ALS research scientists to work against an aggressive timeline for understanding, treating and eventually finding a cure for this disease. The substantial initial funding from these generous supporters is a critical step forward in our effort to provide hope to those affected by ALS.”
“We are combining big data, comprehensive biological analytics, technology and science in a way that would not have been possible a decade ago,” said Clive Svendsen, PhD, Director of the Regenerative Medicine Institute at Cedars-Sinai Medical Center and Co-Director of Answer ALS. “What is so exciting and important is that all of this data will be made publicly available with free, open access to the ALS research community, so that we can make faster and greater strides together to find a cure for this disease.”
“By leveraging clinical and sample data collection systems built by the Northeast ALS Consortium (NEALS) with the support of the ALS Association and ALS Finding a Cure Foundation, enrollment of participants and sharing of data and samples will be accelerated,” said Merit Cudkowicz, MD, Chief of Neurology and Co-Director of the Neurological Clinical Research Institute at Massachusetts General Hospital and Co-Director of Answer ALS. “In partnership with our patients, their families and our NEALS research ambassadors, this collaborative project will accelerate finding treatments for people with ALS.”
The project will create the largest and most comprehensive foundation of ALS data ever amassed, encompassing clinical, chemical, genetic, protein, historical and biological data from an enormous sampling of ALS patients in the United States. In collaboration with machine learning and big data technology, the data will be mined to uncover ALS causes, subtypes, pathways gone awry and drug targets. This will establish a large and critical foundation for new clinical trials, develop new ways to categorize patients to identify specific druggable pathways and subtype biomarkers and disease pathophysiology to aid not only in early diagnosis of the disease, but also to monitor the efficacy of newly developed treatments.
This research project also could potentially provide deeper understanding of Alzheimer’s, Parkinson’s and other neurodegenerative diseases.
Funded by Committed Private Donors
Answer ALS originated as a result of the 2013 ALS Team Gleason Summit, which brought together leading researchers, patients, caregivers and advocates. One of the most significant outcomes of the Summit was a plan to urgently find a treatment or cure for ALS. The event was spearheaded by former NFL player Steve Gleason who lives with ALS and founded the ALS advocacy group, Team Gleason.
A funding effort led by the Leandro P. Rizzuto Foundation and the Robert Packard Center for ALS Research has resulted in $20 million raised for Answer ALS thus far. The initial stakeholder funders are the National Football League, the PGA TOUR, ALS Finding a Cure (a project of the Leandro P. Rizzuto Foundation), Travelers, The Fishman Family and The Bari Lipp Foundation.
Their funding will launch this research project in the coming months. A total of approximately $25 million is needed to complete the first phase of the program. Funding will be coordinated through the Robert Packard Center for ALS Research at Johns Hopkins University and Massachusetts General Hospital for the ALS Finding a Cure Foundation.
“I’ve always said, to change the course of this disease, as a community, we would have to be bigger than ALS,” said Gleason. “I believe that if we commit to this effort, on this scale, we will have meaningful results in our lifetime. Reaching this amount of fundraising success in such a short amount of time is inspiring. I dared capable individuals to step up and help solve ALS. These committed individuals and organizations have boldly answered that challenge.”
“The devastating impact of ALS was fully realized by the PGA TOUR’s extended family in 2004 when it tragically claimed the lives of caddie Bruce Edwards and member Jeff Julian, just months apart,” said PGA TOUR Commissioner Tim Finchem. “And now we learn that one of our dear friends and longtime associates, Jay Fishman of Travelers, has been diagnosed with ALS. We are extremely proud to lend our support to this concerted effort to finding a cure for this terrible disease.”
Jay Fishman, Chairman and CEO of Travelers, who recently announced his ALS diagnosis, said, “After being diagnosed with ALS, I looked for the most aggressive project with the greatest possibility of yielding results through rapid benchmarks and milestones. This was that project.”
Fishman continued, “The passion, commitment and collaborative spirit of this expert group of scientists and clinicians are nothing short of remarkable. I am deeply impressed by their knowledge and dedication.”
“To accelerate development of treatments for people with ALS, we brought together a remarkable team of scientists, a true powerhouse, to answer one of the hardest and most important questions in the biology of ALS,” said Peter Foss, President of the ALS Finding a Cure Foundation, and General Manager of the GE/NFL TBI research project. “We support open, collaborative science that tackles fundamental therapy-driven questions and includes real-time community sharing of data. This is the best approach to accelerate finding a cure for all people with ALS.”
To learn more about the Answer ALS program or to get involved, please visit www.answerals.org or call 1-800-490-2375.
Zofia Consulting is a proud supporter and partner of Answer ALS!
The Innovative Solutions Consortium* is pleased to announce that the following keynotes and judges have been confirmed…
- Gov. Terry McAuliffe, Commonwealth of Virginia
- Dr. David A. Bray, 2015 Eisenhower Fellow and Chief Information Officer of the Federal Communications Commission
- Dr. Eric Williams, Superintendent of Loudoun County Public Schools
- Dr. Kevin Brown, Chief Scientist, U.S. Department of Homeland Security, Science & Technology Directorate
- Dr. Ali Eskandrian, Dean of George Washington University’s Virginia’s Science & Technology Campus
- Rob Powell, Cyber Security Program Manager, National Aeronautic and Space Administration (NASA), Office of the Chief Information Officer
- Eric Hornberger, Chairman of the Loudoun County School Board
- Heather Pospichel, People Strategy and Excellence, National Security Group, Microsoft Corporation
- Rick Gordon, Managing Partner/Venture Capital Investor at MACH 37 Cyber Security Accelerator
- Martin Kaszubowski, Executive Director of Old Dominion University’s Enterprise Center for Innovation
- David Ihrie, Chief Technology Officer, Center for Innovative Technology
- Hassane Bouhia, Verizon Corporate Strategy and Development Executive, Internet of Things
The list of VIPs who are scheduled to attend will be announced shortly, but the list will reflect the diversity of the Washington DC Metro Community in representing leaders in academia, industry, associations, and governement.
Applications are still being accepted from Industry Technologists!
Read about what types of solutions LCPS is looking for, and apply to be considered as a Finalist in this spectacular event. Deadline is August 21st.
With 1000 people coming to this event, you will want to be part of the action on Oct 22nd…Sign up to attend or sponsor the LCPS Challenge TODAY!
For more information please see the previous post on the LCPS challenge!
*Zofia is a proud member of the Innovative Solutions Consortium
Zofia is proud to be a part of The Innovative Solutions Consortium (ISC).
The ISC has partnered up with the Loudon County Department of Economic Development and Loudoun County Chamber of Commerce to hold the LCPS Challenge Event. The ISC will use its open innovation process to bring in potential solutions from around the world. The top Finalists will compete on October 22nd, demonstrating how their solution will help Loudoun County Public Schools (LCPS). It is our goal to bring the best solutions to the county we call home.
Apply to Participate: LCPS Challenge Call for Solutions Application
When: Oct 22, 2015 1:00-5:30pm, followed by networking social
Where: National Conference Center, 18980 Upper Belmont Pl, Leesburg, VA 20176
$30, with 50% of all proceeds donated to educational causes
Free to all government employees and academia (must sign up to be an ISC Member to verify government/academia credentials)
The LCPS Challenge has been designed to bring innovative technologies and strategies to LCPS to help solve some of the school system’s “hard-to-solve” problems. After conducting research, interviews, and one-on-one discussions, we’ve identified 4 main areas:
- Safety and Security
- Administrative Decision Support Systems
- Developing the 21st Century Classroom
- Technology and Tools to Support Education Solutions
The LCPS Challenge will include guest speakers and live demonstrations of all of the Finalists’ solutions to be judged by a panel of LCPS stakeholders, academic, and industry leaders. The awards will include:
- Most Disruptive Technology
- Most Innovative Technology
- Future Innovators (an award for students only)
A series of Collaboration Sessions will be hosted by the ISC. The first is scheduled for June 25th at the ISC Emerging Technologies Event at Microsoft. For more details about the LCPS Challenge and how to participate, go to the LCPS Challenge Call for Solutions Application.
Learn more about our Sponsorship Levels and how you can get involved in supporting this exciting event. Contact Steve Hargan at email@example.com or by phone at (703) 298-9617 for more information.